Intro
One of our appointments took us to a care home where we met a 95 year old man with severe late-stage Parkinson's. I attended with another student who had never met the service user before, and a supervising clinician who had seen him several times.
What Happened?
The stench of stale urine was obvious as soon as we opened the door, and before we had even got round the corner to greet him, we heard "Please, I've wet myself". The clinician carried on, asking him how he was and what he had been up to since his last appointment, his only responses were "I've wet myself" and "Please, take me to the toilet".
Everything that could have gone wrong that day already had, we were running late, and this was the last appointment of the day. The clinician pushed on with the appointment, brushing off the man's requests. I assume she did this as she already knew this was just how his cognitive impairment manifested itself, and it had been a difficult day already.
As we approached the bed, the carpet oozed under our feet. We all ignored this, and the clinician embarked on getting the man sat up in bed. I saw her wince as she sat on the bed to help him, but again she pressed on. The man couldn't maintain his balance sitting upright, his Parkinson's causing him to sway backwards, so the clinician asked me to clamber on to the bed and kneel behind him to help keep him upright. I realised why she had winced when she sat down, the bed was soaked. I felt cold urine seeping up from the bed to my shins, and from the man's trousers to me knees. Still we pressed on, and got him sat up in the transfer aid.
"Are you taking me to the toilet now?"
"No, X. We're going to do some standing exercises now"
"Please, I need the toilet"
" We won't be long. We'll take you when you've finished your exercises"
We wheeled him to the middle of the room so we could stand either side to support him.
"Come on, X. Let's try standing up now"
"But please, I need the toilet!"
"Lets just do five stands first. Come on, you can manage that can't you?"
So he pulled himself up, with a student supporting him either side. He managed three, getting slower each time, then he suddenly stopped, turned to face towards me, and contorted his face. The poor man had messed himself in front of all of us.
"Right, Hannah, go find a carer. We'll get X back to bed"
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Feelings
I was horrified, and couldn't believe what I had just witnessed. Was that normal? It must have been, or the clinician would have gone to get a carer immediately and not proceeded with the appointment. Why had the carers left him so long that he had soaked through his pad, clothes, bed and the carpet, for so long that the urine had gone cold and stale. Was this just normal for the care home?
Had I just witnessed abuse? Neglect? Who was at fault here, just the carers, or the clinician as well? Did I need to tell someone, or should I not rock the boat?
The entire appointment was incredibly uncomfortable at the time, but for the days that followed, I felt immense guilt and kept thinking about the poor man and the state of care he was living in.
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Action Plan
I researched all the different organisations I could report my concerns to, and but struggled to decide which would be the most appropriate. I made a table on the pros and cons of contacting each, and tried to critically analyse whether I would be comfortable with actually going ahead and speaking to them.
I discussed my reservations with the Hourglass Helpline, having been signposted there by NHS resources. They suggested speaking to my Line Manager at work as a first port of call, with a view to discussion with the man's GP and social worker to try and resolve the issues at hand, rather than going straight to regulatory bodies. I was very nervous about this as I didn't want to "rock the boat" during my placement, but realised that my ongoing guilt was indicating that this was the right thing to do.
I'm glad I weighed up the different options regarding who to speak to, as I found difficult to find a balance between being excessive or complacent in my concerns. Reporting to my line manager feels like one of the more conservative options in this case, but at least it will start the ball rolling to give this man the standard of care he deserves, and hopefully protect him from neglect in the future.
Learning to find an appropriate balance for reporting concerns will help, should I ever encounter further safeguarding issues in future, as it will help me to choose the most appropriate pathways on a case-by-case basis
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Evaluation
I realised that the encounter had left me with three feelings that needed unpacking: confusion, discomfort, and guilt.
To address my confusion, I need to find out if something wrong had actually happened here. Was this a real safeguarding concern, or was I just being precious?
Regarding feeling uncomfortable, I needed to find out what should have happened when we encountered this man. Was it right to continue with the appointment, or should we have gone to get carers right away?
Finally, to address the guilt, I needed find out what the right thing to do was once the appointment was over. Should I report this to someone?
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Conclusion
From exploring different definitions of abuse and neglect, I realised that they were not mutually exclusive, and that both had occurred in this case. Neglect had taken place, due to the lack of action taken to meet the man's hygiene needs, and abuse had occurred, as our actions lead to him being subject to distress and loss of dignity. I realised that this was the case for the carers, the clinician, and both of us as students, as we were all responsible for subjecting him to the distress and loss of dignity that he experienced.
Learning this helped to resolve my confusion and discomfort, but did nothing to lift my guilt. I knew the only way I could do so was to report this to the appropriate bodies.
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Analysis
I realised that I couldn't tell if I had witnessed abuse or neglect, so I needed to find out what the differences between these things are, and if either of them had actually occurred here.
I also struggled to tell who was at fault. Was it just the carers for not attending to his hygiene needs? Or had we as a therapy team also been wrong for continuing with the appointment, both on finding him in a poor state of care, and with him repeatedly telling us he needed the toilet.
Finally, I needed to find out if this was something that needed reporting, and if so, to who? I knew that in a hospital environment I could speak to a FTSU guardian, but I didn't know if this was also the case for community care.
I'd need to be comfortable with my knowledge for all of these factors, in order to correctly safeguard service users in future if I ever witness poor standards of care.
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Links to resources
WHO - Elder Abuse
https://www.who.int/news-room/fact-sheets/detail/elder-abuse
AgeUK - Protection from Abuse
National Adult Protective Services Association - What is Neglect?
https://www.napsa-now.org/get-informed/what-is-neglect/
NHS UK - Neglect of Vulnerable Adults
NHS Safeguarding app
https://www.england.nhs.uk/safeguarding/how-to-raise-a-safeguarding-concern/
NHS UK - Abuse and neglect of vulnerable adults
Hourglass Helpline
https://wearehourglass.org/hourglass-services
CQC Recommendations on raising concerns
https://www.cqc.org.uk/sites/default/files/20200420_Whistleblowing_quick_guide_final_update.pdf
CQC and Freedom to Speak Up
https://www.cqc.org.uk/sites/default/files/CM091808_Item8_ftsu_policy.pdf
Definitions
Elder Abuse:
"a single, or repeated act, or lack of appropriate action, occurring within any relationship where there is an expectation of trust which causes harm or distress to an older person. This type of violence constitutes a violation of human rights and includes physical, sexual, psychological, and emotional abuse; financial and material abuse; abandonment; neglect; and serious loss of dignity and respect" - World Health Organisation
Neglect:
- wilfully ignoring medical or physical care needs
- failure to provide access to appropriate health or social care - AgeUK
Physical Neglect of Adults:
Failing to attend to a person’s medical, hygienic, nutrition and dietary needs, such as dispensing medications, changing bandages, bathing, grooming, dressing, or failure to provide ample food to maintain health. - National Adult Protective Services Association
Neglect of Vulnerable Adults:
Neglect includes not being provided with enough food or with the right kind of food, or not being taken proper care of.
Leaving you without help to wash or change dirty or wet clothes, not getting you to a doctor when you need one or not making sure you have the right medicines all count as neglect - NHS UK